Some times it's hard to post updates, because it feels like there is nothing to update. Things are the same. That's life with chronic illnesses right? It's been over two years since I went on medical leave due to my persistent health issues. What have I done in that time? I've spent a lot of it in bed. In pain. In tears. And questioning.
Questioning doctors. Questioning diagnoses. Questioning treatments I've received. Questioning God. Questioning myself. Questioning my purpose. Questioning what's next.
I've also continued learning. I've learned quite a bit about my own health issues. I've taken courses. In the past two years I have become a life coach so that I could help other people navigate their new normal with a chronic illness. I have spoken with a number of people online, but never had a "client". I took a course on becoming a Light Medicine Healer. I feel like that was similar to what Healing Prayer is. I've only shared this with some, and even though I completed the course (and paid for it), it hasn't produced anything of value.
I started Chronicles of Chronic Ills L.L.C. and under that created an online shop through Shopify and Etsy, and needless to say, I am not an eCommerce success story.
I created a medical journal and selling it in person and on Amazon. I've sold two. ;-)
I've written three stories about chronic illnesses, but have yet to find an illustrator and publish them.
I was an Uber driver when my symptoms allowed me, but what they don't tell you is that you only get a small percentage of what riders pay and most people don't tip. The cost of gas and vehicle maintenance was not worth the little I received.
I became an online rater/reviewer of AI responses to help AI adapt. This is also not lucrative. Often there are not tasks to complete when I actually feel well enough to work on them. You also don't always get paid for your work... which is not something I will go into.
I have tried to be paid for research studies, and have yet to actually participate in one despite the hours of reading through summaries and answering questions.
I'm now taking a course to become a certified data analyst, learning SQL, R, and better understanding spreadsheets and Excel. I'm more than half way through the courses and hit a bit of a stalemate with it. I enjoy working with spreadsheets, numbers and data, but am I pushing myself in another direction that will end up leading nowhere like everything else has?
I guess I'm writing all of this to remind myself that I'm trying. I'm not giving up even though most days are a challenge. A challenge to wake up. A challenge to brush my teeth. A challenge to get out of bed. A challenge to manage my symptoms.
I thought there should be a database with resources for people like me. A list of jobs that are flexible for people with chronic illnesses, since most chronic illnesses don't qualify for disability. I created a LinkedIn account for Chronicles of Chronic Ills so that maybe this site could become a database for chronic illness sufferers that are looking for flexible remote jobs. (No, the people on Tik Tok and Instagram do not actually share jobs.. thanks to those who try to send me those though!) I want to try to find companies and/or recruiters that will make being able to find work as a chronically person less challenging. Maybe this too will go nowhere, but I'm trying.
Thanks for taking the time to read about my tryings.
If you or someone you know wants to:
share their journey with chronic illness, email admin@chroniclesofchronicills.com
hire a life coach using the Brave Thinking Institutes 12 week program, or a custom plan, email anna@chroniclesofchronicills.com or desi@chroniclesofchronicills.com
try prompts meant to help heal through Light Medicine, email anna@chroniclesofchronicills.com
have a custom made product from Printify, email anna@chroniclesofchronicills.com
have a custom made spreadsheet to track symptoms or habits in 2024, email anna@chroniclesofchronicills.com
Thanks for chugging along with me on this journey.
Random side thought. It's annoying me that Wix no longer lets me custom change the size of images and align them with text. It's full page size, or the size above... and only goes in the middle of the page now. #Boo
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